Help us w/Medical Research

​May 1st through October 31, 2024, join the Spastic Paraplegia Foundation in fundraising for #HSPandPLS medical research with the 5K Run, Walk or Roll.

Compete on your own, recruit family and friends to participate, or plan an in-person event for others in your area. Can’t Run, Walk, or Roll? How about calculating the time you spend stretching, exercising, swimming, or going to physical therapy? Set a goal to do at least one hour of exercise. Split your time up over several days or weeks if you need to. Whatever is best for you. Make sure you check with your healthcare professional before doing anything you are not used to.

You can participate any time from May 1st through the end of Oct, but we challenge you to complete your fundraising by Aug 25th so we can celebrate as a group during SPF Awareness Week, which starts Aug 17th. Race bibs will be mailed as soon as you register and contribute $25. T-shirts will be mailed as soon as each participant raises/contributes at least $100. Please remember that only those that set up a personal fundraising page and raise/contribute at least $100 will receive a complementary T-shirt once qualified. This is a thank you for your help in raising much needed funds for HSP & PLS research.

Click the Start Fundraising button to set up your personal fundraising page, visit this site to see more details and start raising funds. Grab a photo to upload, create a personal message to ask for donations, and set a goal. Not sure how much you can raise? Start with a goal of $500. You might be surprised. You can always increase your goal as you succeed. Once you are set up, please share your link with family and friends and see how you do. There are icons provided that allow you to share your personal page with your social media accounts. Please note that Facebook and other sites do not provide us with contact information for donors. If you do raise money that way, please make sure to thank your donors.

You can view your personal page anytime to see how much you have raised and any special messages that donors may have left for you. Be creative and have fun! There were some participants from last year that used mobility devices to participate. At least two swam their way to raising funds for medical research. Some played tennis. One played golf. Search adaptive sports online. You might be amazed at what you can do. Take photos and videos and share them on social media.

If you would like to host a 5K event or have questions, please email jim.sheorn@sp-foundation.org You will be emailed a "How to Plan a 5K guide", which will provide a step-by-step process to get ready for your event. Please do not get overwhelmed. If this is your first time planning an event like this, start small. Invite family and friends this year. Invite more next year.

Go to Awareness Week on the SPF website for more information on HSP & PLS Awareness Week.

Thank you and Good Luck!