We can help raise money for more research into Spastic Paraparesis, a rare disorder that is never discussed, due to not many doctor's or people know that it exists.

Join me in supporting real change. Let’s support good in the world and make a difference. Help us for Spastic Paraplegia Foundation, Inc

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My maternal grandfather was diagnosed with Spastic Paraplegia when I was in my late teens. I watched it slowly deteriorate my papa into someone I didn't recognize anymore. He passed away in early 2000, I lost a special person in my life. Throughout the years following, one of his son's and one of his daughters was diagnosed with Hereditary Spastic Paraparesis (HSP). Then my uncle's son, my cousin, was diagnosed. I watched what they were having to go through in their lives, having to move to one story homes, then the canes, the walkers and now my uncle is in a wheelchair. I started to show some symptoms in 2014, which my neurologist first diagnosed me with restless leg syndrome. In 2018, I was finally diagnosed with HSP due to me showing all of the symptoms as my family. I didn't do a genetic test until 2025 and found out this year what exact gene I had. I do not know what gene, if the same, that my uncle, aunt and cousin have, as I have lost contact with that side of my family. Due to increase in pain and symptoms, I retired early in 2021 as a litigation paralegal. I miss very much being a litigation paralegal. I loved my job helping personal injury client's get justice for an accident, slip and fall and even some dog bite cases. I have a 26-year-old son and a 12-year-old daughter. I was told that my son has a 50% chance of having the gene, whereas my daughter does not. I would like people around the world to know that this rare disorder exists and that there is hardly any money for research that us living with it desperately need. There is no cure, only treatments to help with the symptoms.