Edward & Suzann Duffy

Edward & Suzann Duffy's Fundraiser

We are making progress against these diseases. image

We are making progress against these diseases.

Join me and help make a difference, please give today.

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$0 towards $10,000

Join us in supporting real change to stop these diseases or at least the progression of their awful symptoms. Through funding of scientists over the past years, much progress is being made and in a few childhood onset cases, the children are seeing real improvements - giving them the ability to walk or communicate and extend their lives.

We still have lots of work to do and together we can make a difference. The foundation is working together with groups around the world, coordinating efforts. Our picture above is from a trip to Norway in late January where we brought SPF to the Arctic Circle and joined in for some fun - blue noses and Aquavit. It made it very clear that we have to do traveling now as the progression of my variant SPG4 isn't slowing down, regardless of my exercise, PT and water aerobics routines. Help us meet or exceed our goal with this fundraiser to support the efforts of the Spastic Paraplegia Foundation, Inc to find the cure or at least the means to lessen the symptoms.

SPF has gained so much respect for its efforts in bringing doctors and scientists from around the US and the world together that it has earned the respect of both the NIH and FDA, and is being brought in to discussions about the future of research we need.

Your donation will go a long way to helping me meet my goal for Spastic Paraplegia Foundation, Inc and ultimately help all of us with HSP and PLS

with our love and appreciation for your support,

Sue and Ed