My goal is not only to support Hereditary Spastic Paraplegia research, but to also give visibility to this rare condition.

Please contribute to the Spastic Paraplegia Foundation in honor of Gabriella who has Hereditary Spastic Paraplegia. Every day she refuses to let it define her. Seeing her strength and resilience has deeply inspired me.

Hereditary Spastic Paraplegia (HSP) is a chronic, degenerative neuromuscular disease like Lou Gehrig’s (ALS). HSP greatly diminishes the quality of life of those affected. Many times, patients with HSP are initially misdiagnosed with ALS, Multiple Sclerosis (MS), or Cerebral Palsy (CP) causing confusion and improper treatment. In North America, it is estimated that about 20,000 men, women, and children suffer from HSP.

The most visible symptom for both HSP is trouble walking, which may require the use of a cane or walker, and ultimately, may use a wheelchair. Those affected with HSP can also suffer from great pain, balance disturbance, and bladder or bowel problems. Complicated forms of Spastic Paraplegia can cause dementia, epilepsy, vision problems, skin problems or other neurological problems.

There are currently no treatments available to prevent, stop, or reverse HSP. Treatment is focused on symptom relief, such as medication to reduce spasticity; physical therapy and exercise to help maintain flexibility, strength, and range of motion; assistive devices and communication aids; and supportive therapy and other modalities.

The Spastic Paraplegia Foundation is committed to funding medical research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educate people affected by these conditions with the latest in medical research and treatment options, and to help those affected live full and productive lives. 97% of all funds raised are spent on this mission. SPF is a national not for profit.

The Spastic Paraplegia Foundation, a 501c3 organization (04-3594491), is the only organization in North America dedicated to finding a cure and providing support to those affected by HSP and PLS. The impetus for forming SPF was inspired by the accelerating pace of research. SPF is the leading funder for medical research for both diseases.

https://sp-foundation.org/