Ron, Tracy & Sage Hood's Fundraiser
Make a Difference in the Fight to End Rare Disease
Spastic Paraplegia Foundation: Tracy's 3rd Annual Run, Walk, or Roll 5K #HSPandPLS
Ron Hood
"It is inspiring to see your continued motivation to help others by consultation, friendship, fundraising & being a foundation ambassador! 💙😁"
$800
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Sage Hood
"I love you mom! You are so strong! Let’s crush this 5k!"
$200
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Chris Kurus
I donated in support of this campaign.
$100
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Elyse Aion
"the number 18 means life- so this year 5X good life!! Love"
A supporter of Ron & Tracy Hood
"Happy Birthdayyy💕💕 Sending love and support always!!"
$100
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John Casmier
"I pray this contribution can assist in the hope and progress for a brighter future in facing this challenge. "
$50
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Kathy Keim
I donated in support of this campaign.
$50
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Laura Becker
"So amazing what you are doing to help others, Tracy! With gratitude, Laura"
$50
A supporter of Ron & Tracy Hood
"I'm sorry I won't be able to join the 5k this year, but know I'll be thinking about you that day. And wishing you a very Happy Birthday 🎂🎉🎈"
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Salvatore Ponzo
I donated in support of this campaign.
$50
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Karyn Strait
I donated in support of this campaign.
$25
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Brenda Colon
"HSP has affected so many in my family including myself. Terribly progressive disease."
$100
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Tony & Jenny Grande
"Keep moving Tracey, you are an inspiration beyond words!!!"
$100
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Hank Wong
I donated in support of this campaign.
$100
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Dawn Graner
I donated in support of this campaign.
$100
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Penny J Mastry
"Prayers for the Courage and Strength on this challenging journey may God rest his hands upon your shoulders guiding the gifts for a cure ."
$100
A supporter of Ron & Tracy Hood
I donated in support of this campaign.
$50
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Laura Beckner
"I am so proud of you and your continued dedication."
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Michelle Avila
"We are so proud of you Tracy and happy to support this cause in your honor!!! Looking forward to doing the walk with you."
$50
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Shirley Hood
"Love you Tracy. You got this!"
$100
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Ed & Gayle Ott
"God Bless you and all you do for this great cause! Ed & Gayle Ott"
$50
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Joyce Hood
I donated in support of this campaign.
$500
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Steve & Lisa Peters
"Tracy you are such an inspiration ! Charge On! "
$200
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Carol Decot
"I'm very Happy to support you. Love you Aunt Carol"
$100
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Terrie Bright
"We love you here in Buffalo Tracy and support you every step of the way "
$100
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Racheal Barraclough
"We love you Tracy!"
$100
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Tim Barraclough
"Tracy, this is awesome what you are doing for this foundation. Keep up the hard work!"
$250
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Niki Hood Malveaux
"Tracy - You are amazing and we love you. So proud of all you have done for this foundation. "
$100
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Kelly Kalbas
"Love you Tracy!"
$150
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Kathleen Nock
"Much love, Tracy! <3"
$50
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Allen & Paula Barraclough
I donated in support of this campaign.
$100
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Ron, Tracy & Sage Hood
"Let's Do This! Join Me!"
$100
OUR GOAL:
I am excited to kick off fundraising for my 3rd year participating in the Spastic Paraplegia Foundation's #HSPandPLS Run, Walk or Role 5k! Last year, we successfully raised over $5,000 for this event. I'm hoping to match or exceed that again this year!
Please consider a donation to support this cause, to help me meet or exceed my goal for Spastic Paraplegia Foundation, Inc. SPF prides itself on being a fully volunteer-run organization and 93.3% of the donations are used to fund research for a cure!
MY JOURNEY:
I suffer from Hereditary Spastic Paraparesis. I had never even heard of HSP before my diagnosis. With sudden onset in the spring of 2015 and confirmed through genetic testing in 2016, I was also diagnosed with secondary afflictions of hypothyroidism, acute onset high blood pressure and asthma. I'm happy to share that I have since balanced the high blood pressure and the asthma, which are no longer issues. This has been a journey like no other. For the past 10 years, I have experienced decreased feeling and function in my back, legs and hips. I struggle daily with balance issues and chronic pain. The simple task of walking now requires thought and effort. My genetic mutation is SPG5A; it is recessive and rare. Last year, I had the opportunity to participate in two separate clinical studies that hopefully unlock knowledge that can lead toward therapies and a cure.
I stay focused on the positives and incremental wins gained through regular exercise to keep function and mobility stable, gaining strength through exercise and movement. I'm able to do this with the loving support of my family and friends. I am committed to walking and completing this 5K and continuing to fight for a cure!
SHUT UP LEGS ... WE GOT THIS!
What are HSP and PLS?
HSP and PLS are upper motor Neuron Diseases that are the result of degeneration of Upper Motor Neurons. Upper Motor Neurons are the nerve cells that control voluntary movement. They are in the motor cortex of the brain and carry messages from the brain to the brain stem and spinal cord. They connect to the lower motor neurons carrying messages to muscles to guide movement.
When there is degeneration in the upper motor neurons, messages cannot effectively reach lower motor neurons and their messages to corresponding muscles are impaired. This causes the muscles to be weak and muscle tone to be increased, resulting in stiffness or spasticity.
In both HSP and PLS, nerve degeneration occurs in the lower part of the spinal cord, resulting in weakness and spasticity in the lower body. In PLS, the degeneration also occurs at higher regions in the spinal cord and brain steam, causing weakness and spasticity in the arms, slurred speech and difficulty swallowing.
SP-Foundation.org