Zona Reid

Zona Reid's Fundraiser

Help me raise funds to cure SPG4! image

Help me raise funds to cure SPG4!

Please help support funding for research and clinical trials to cure SPG4, a type of HSP.

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$7,225 towards $7,000

This year my 2 year old son, Rowan, received a diagnosis for a very rare progressive motor neuron disease called spastic paraplegia type 4, or SPG4. It is a type of hereditary spastic paraplegia (HSP). There is no cure or treatment for SPG4, only physical therapy to strengthen the muscles and procedures/medications to manage the spasticity.
The future of this disease is uncertain, which is scary - but it’s also hopeful. There’s no one way that SPG4 progresses, so we are going to hold expectations high for Rowan. No matter what, he is so deeply loved by all of us, and he is the absolute happiest and sweetest child I’ve ever known. He is creative, outgoing, determined, and joyful. And of course he has us to advocate for him, care for him, and help support him whichever way he needs us to as he grows. Join me in supporting the funding for research to cure SPG4 through the Spastic Paraplegia Foundation, Inc.