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A Cure is Within Reach

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You'll Be So Glad You Helped!

Hereditary Spastic Paraplegia and Primary Lateral Sclerosis are two rare progressive upper motor neurological disorders that take away the victim's ability to walk and more. They can start at any age. The more we learn about them, the more we are finding clues to how to stop or even reverse the progress of these devastating disorders. To date we have discovered the genes for over 80 different forms of HSP and vital registry information has been recorded and scientists trained for PLS. In 2019, two or three very promising new drugs should go to Clinical Trials for HSP. This will be expensive and so all of us need to do what we can.