Help me raise funds for research into HSP & PLS - it’s rare, incurable, progressive and degenerative! We need your help to find a cure 🙏🏻

As you probably know by now, I’m rare! Lol, but seriously, I was diagnosed in 2016 with Complex Hereditary Spastic Paraplegia (HSP) - a rare neurodegenerative disease. It is a predominantly upper motor neurone disease, a benign ‘cousin’ of what is commonly known as MND/ALS (Lou Gehrig’s) but because it is far rarer, we rarely (no pun intended) get any exposure in the media, or awareness within the medical profession or general public. This leads to a lack of support for sufferers and a lack of vital funds for research, which tends to go to the more common neurological conditions.

Aside from all the horrible stuff that goes with HSP, I can’t walk very far; it is rather precarious due to stiff muscles, dodgy nerve wiring and really crap balance - I walk a bit like a very slow, drunk camel!
So, I hear you ask, ‘how are you going to do a 5K Pip?’ Well, very slowly…in very small chunks! I have my trusty Apple Watch to monitor every step I take…every breath I…oh, sorry, wrong lyrics 😆 So, yeah, it’s going to be a journey of 5k that starts with a single step…and then lots of little random steps. Eventually I will get there!! 🙌

What is Hereditary Spastic Paraplegia? 👈 Hit the link to find out more about this incurable upper motor neurone disease.

And please hit the donate button 👇🏻👇🏻 if you have a few spare pounds/dollars. Thank you so much 😘

Join me in supporting real change. Help us find a cure, treatments, and therapies for those affected with Hereditary Spastic Paraplegia and Primary Lateral Sclerosis.

Just a small donation will go a long way to helping me meet my goal for Spastic Paraplegia Foundation, Inc.
SP-Foundation.org