Rachel Dean's Fundraiser
Sage’s fundraiser for HSP research
Donate to support the Spastic Paraplegia Foundation
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Kallye Walley
I donated in support of this campaign.
$25
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Kat Reyes
"Our Lord And Saviour will be with you every step of the way. He is the One who’s trust and comfort will always be there..such a beautiful girl you are"
$100
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Sheila Adkins
"We’ll be walking, running, and rolling with you next week! "
$50
Kristina Langley
"Prayers from the Langleys!"
$50
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Andrew & Anna Seidlitz
"We love you guys!"
$25
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James Dean
"Jamey and Anne love you guys"
$100
Brian Andrew
I donated in support of this campaign.
$100
A supporter of Rachel Dean
"This is from your Great-Granny and Aunt Deborah, Sage. We love you and pray for you. "
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Deanna Kartchner
"Praying for Sage and her precious family. Uncle Marvin and Aunt Deanna "
$50
Brian Govi
I donated in support of this campaign.
$25
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Dama Dean
""Lots of love from Pop and Granny""
$100
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Patrick & Kathy Ness
"Nana and Bepa love you Sage!"
$100
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Lance & Pam Adkins
I donated in support of this campaign.
$100
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Martha Jo Lennox
I donated in support of this campaign.
$100
Sage was diagnosed with the rare genetic disorder called Hereditary Spastic Paraplegia on May 2, 2022. Her type is SPG30 with K1F1A being the affected gene. Primarily her legs are the most affected and will progressively weaken and become more spastic overtime leading to increased pain and discomfort. However her type of HSP is also considered complicated, meaning more than just her legs are affected. She also suffers from hand tremors, speech difficulty, and impaired learning.
August 20-27th is HSP awareness week and we want to use that time to spread awareness and also raise money for medical research into HSP and maybe even a possible cure in the future. There is so much still unknown about the disease and before genetic testing became more readily available it was often misdiagnosed as cerebral palsy.
Sage is a fighter with the best attitude! We want to show her an example of doing hard things and never giving up! So, with every $100 donated, we are pledging to run/walk/roll 1 mile as a family during awareness week! Please consider donating to our cause, joining us in running, walking, or rolling these miles, and or joining us in prayer for Sage and others like her facing a lifelong battle.