Barbara Lawrence's Fundraiser
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Lori Husmann
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Michelle Sims
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Barbara Lawrence
I donated in support of this campaign.
$25
I have HSP = SPG4 that is Hereditary Spastic Paraplegia. I was 41 when I found out that had it. My father had it and other family members have it too. I lived life normally as many of us do. But now a day, month, or year, this disease will change my freedom (my husband has seen it happen). HSP affects people in different ways, and as a result, treatment programs will vary. Although there no way to stop, slow, or reverse the progressive disability of these disorders. I am doing this to help (USA), so we can have clinical Trial Drugs and more.
My goal is to work daily at the gym for 1 to 2 hrs for a month, this is very important to me.