Kristen Binder

Kristen Binder's Fundraiser

We can as we accumulate donations we can award grants recommended by our Scientific Advisory Board image

We can as we accumulate donations we can award grants recommended by our Scientific Advisory Board

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$25 towards $1,000

Join me in supporting real change. Let’s support good in the world and make a difference. Help us The more research we support the quicker a cure can be discovered for Spastic Paraplegia Foundation, Inc

I had struggled all my life with spasticity and muscle weakness in my lower extremities. In my younger years I was always seeing different doctors and neurologist and getting diagnosed with things that didn’t even seem right. In the Summer of 2016 I was finally diagnosed via genetic testing with Hereditary Spastic Paraplegia, with a gene mutation of SPG7.

Hereditary Spastic Paraplegia (HSP) is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. Researchers estimate that some 90 different types of HSP exist; the genetic causes are known for about fifty. The HSP incidence rate in the United States is about 20,000 people. The condition is characterized by insidiously progressive lower extremity weakness and spasticity. HSP is classified as uncomplicated or pure if neurological impairment is limited to the lower body.

Just a small donation will go a long way to helping me meet my goal for Spastic Paraplegia Foundation, Inc